Mar
27

The Big Three K’s Craniosynostosis

By

The three of us here at RAB try our best to make the site as fun and informative as possible, and judging by how popular it’s become, it’s safe to say that we’ve done a pretty good job. Usually we take that popularity and use it to rub our egos while wallowing in our own self-righteousness, but it’s about time we did something constructive with it.

Craniosynostosis is a birth defect characterized by the premature closure of sutures in an infant’s head, which causes an abnormally shaped skull and in severe cases, places excessive and damaging amounts of pressure on a growing child’s brain. One in every 2,000 children are affected, with males being affected three times more than females. Jorge Jr., son of Yankee great Jorge Posada, was diagnosed with craniosynostosis when he was just ten days old, and has since undergone five surgeries to the correct the condition.

The Jorge Posada Foundation was launched in 2000 with the goal of providing emotional and financial support to families with children affected by craniosynostosis, as well as to provide funding for research and create further awareness of the condition. Since it’s inception, The Jorge Posada Foundation has raised millions of dollars and provided immeasurable support to those in need, but there’s still so much more that can be done. And that’s where we come in.

This season we’re going to hold a pledge drive where readers of RAB agree to donate an amount of money (set by them) for each strikeout recorded by The Big Three. At the end of the year we’ll collect the pledges and donate all of the money to The Jorge Posada Foundation in the name of “The Readers of River Ave. Blues.” So say that Hughes, Joba and IPK combine to rack up 500 strikeouts on the season, and a reader agrees to donate five cents per strikeout, then 500 K x $0.05 = a $25 donation. That’s it, piece of cake. Any denomination is welcome, and all donations are fully tax deductible.

If you’re interested in pledging, shoot me a line at mike (at) riveraveblues (dot) com. Please put “Pledge Drive” or something to that effect in the subject line, and be sure to provide an email address that I’ll be able to contact you at for the forseeable future. I’ll keep track of the pledges throughout the season, and contact everyone when the time comes. PayPal transfers seem to work best, but we’ll also accept donations in the form of money order or personal check. Until we get a better system figured out we’re going to have to do this on the honor system, so please, serious pledges only.

Eventually we’ll get a permanent link up on the site somewhere where you can read about what we’re doing whenever you please. We’re not going to have any strict limitations on this, so if you get the urge to pledge in August for the rest of the season, that’s fine. If you want to pledge but not have your contribution exceed a set amount, that’s fine too. We’ll get it to work so that everyone wins. The more pledges the merrier, and this gives all of us another reason to root hard for The Big Three.

Jorge’s been there for the Yankees and their fans since 1995, so it’s time to be there for him. Come join us in fighting this terrible condition, and if nothing else, do it for Jorge Jr.

16 Comments»

  1. Jamal G. says:

    Wow guys, that’s truly amazing. Have you contacted the Jo Po Foundation about this future donation?

    I will try to call-in some radio shows and put the word out, maybe that’ll draw a few extra donations and future fans of the site.

  2. Tommy says:

    As a craniosynostosis survivor, I think this is a great idea. Count me in.

  3. Adrian-Retire21 says:

    Great idea.

  4. Whitey14 says:

    I think that’s an outstanding idea and very gracious of you folks to try and help.
    I remember a piece, I think it was on HBO Real Sports, from a few years ago where they profiled Jorge Jr’s condition. They spoke of how all the All-Star Players that season had their sons go on the field in replica uniforms to represent their Dads and how little Jorge Jr. couldn’t participate. It was a real gut-wrenching piece. I really respect Jorge for helping to bring this conditon into the public view and for raising money and trying to help other families in this situation. You just don’t hear enough about the good things that athletes do.

  5. [...] but certainly not least, please consider pledging for The Big Three K’s Craniosynostosis if you haven’t already. It’s our good deed for the year, and it’s a worthy cause [...]

  6. [...] The Big Three K’s Craniosynostosis – Mike A. – River Ave. Blues [...]

  7. [...] Please pledge to join the RAB Big Three K’s Craniosyntosis fund drive. We’ve raised a total of $3.17 per Big Three strike out so far…Please take a minute to [...]

  8. Bill says:

    Great idea! There’s more information about Craniosynostosis here. Check it out!

  9. [...] in 11 wins for our trouble. The 81 walks were a bit of a concern, but with the Big Three (no, not that one or even that one) in Zito, Mulder and Hudson in front of you, it looked like you had exactly the [...]

  10. [...] he’s given up just 27 hits while striking out 35…Please consider donating to the Big Three Ks Craniosynostosis fund drive…Last night, we had over 200 posts on the game thread. That’s a RAB [...]

  11. moana kay says:

    my son has been diagnosed with craniosynostosis and we are not having good luck with getting our insurance company to pay for the surgery. I am interested in finding out about any possible funding through the jorge posada foundation.
    thankyou moana

  12. [...] not throwing fast enough. With Hughes on the mound, I’d be remiss not to mention the Big Three K Craniosynostosis pledge drive. Please consider donating if you haven’t [...]

  13. [...] left…Thirteen games into the season, and we’ve raised a pledged $93.70 as part of our Big Three K Craniosynostosis fund drive. Please consider donating. Every amount [...]

  14. [...] the outset of the sean we announced our plan to raise money for The Jorge Posada Foundation with The Big Three K’s Craniosynostosis Pledge Drive, where readers pledge a certain amount of money for each strikeout recorded by Phil Hughes, Joba [...]

  15. [...] in March we announced our plans to run a pledge drive during the season to benefit The Jorge Posada Foundation. RAB was growing at an exciting rate, so we decided to take advantage of the increased popularity [...]

  16. Faye Ketch says:

    I have been searching for some help for my granddaughter who has cranialsynostosis. She was born preterm and was not expected to live. She and the mother did survive the life threatening surgery but the baby was diagnosed with this condition. She had surgery 3 months ago to correct some of the problems with her skull. She is having to wear a helmet for the next several months. This has put a financial strain on her parents budget. The cost involves a week long stay in Texas, hotel fees, rental car, food and plane fare. They are getting ready for their second trip to Texas with very little money. Please let us know if there is an Agency that will assist them. This will not be their final trip. They are also having to pay a portion of the helmet cost as the Insurance Co will pay only a small portion. Thanking you in advance for any information. Ms. Ketch

Leave a Reply

You may use <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong> in your comment.

If this is your first time commenting on River Ave. Blues, please review the RAB Commenter Guidelines. Login for commenting features. Register for RAB.